Get in touch
Get in touch

Take action:

Get involved and help support our advocacy efforts

Join the Facebook group

Our primary gathering place is on the Forgotten Lives UK Facebook Group. Be part of our community, share your experiences, and support our advocacy efforts. If you are on Facebook, do please join us there. After requesting to join, please message admins Nikola Brigden or Mark Oakley for admission.

Join the group

Write to your MP and Members of the House of Lords

One of the most impactful actions you can take is to write to your MP.

To assist you, we have provided guidance on crafting your letters. It’s important that you personalise the letter to reflect your own situation, as this will make it more effective.

Download the guidance


Please also include a copy of the joint charity letter that was delivered to the Prime Minister Rishi Sunak on the 26th March 2024 on the 4th anniversary of UK lockdown.

Download the letter

Take part in the STRAVINSKY Study

What is the STRAVINSKY study?

The STRAVINSKY study aims to provide doctors, policymakers, and members of the public with up-to-date information on the impact of COVID-19 and booster vaccinations on people who are immune vulnerable. STRAVINSKY stands for ‘Stratification of Clinically Vulnerable People for COVID-19 Risk Using Antibody Testing’.

What are the aims of STRAVINSKY?

Over the next two years, STRAVINSKY aims to build our understanding of who is most clinically vulnerable to COVID-19 infection and identify individuals or disease groups at highest risk. Using this information, STRAVINSKY will be able to assess the effectiveness of any upcoming booster vaccine programmes or new treatment strategies for these patients as well as respond if significant new COVID-19 variants are detected. It will investigate whether an antibody test result can predict an individual’s risk of severe COVID-19 infection.

Who’s involved?

STRAVINSKY is funded by National Institute for Health and Care Research (NIHR). It brings together researchers from 12 UK universities and hospitals, all with expertise in treating patients with different conditions that affect how their immune systems function. The project is led by researchers from the University of Birmingham, University of Southampton, University of Oxford, and Imperial College London.

Take part

STRAVINSKY is recruiting up to 2,600 patients to take part in this research who either have conditions or take medication that affect the functioning of their immune system. Professor Alex Richter from the University of Birmingham says, “We want to recruit up to 2,600 patients who are clinically vulnerable from all backgrounds to take part in our study. Their participation will be crucial in allowing us to build our understanding of the risk of COVID-19 infection experienced by people with different conditions.”

Find out more

Other ways you can help

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Provide help or legal advice

We are keen to work with anyone who can help in our campaign. If you are a lawyer with experience in disability discrimination, work in an organisation that can assist us, or are a charity who would like to join our coalition, we would love to hear from you. Your expertise can be invaluable in our fight for the rights and protections of immunocompromised individuals. Please contact us to discuss how you can contribute to our advocacy efforts and help make a difference for this community.

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Make media contact

We need to generate as much attention as possible for this critical issue. If you have media contacts or work in the media, we would greatly appreciate your support. Please reach out to us to help amplify our message and advocate for the protection of the immunocompromised community. Your involvement can make a significant difference in raising awareness and driving change.

Contact us

If you want to get involved, have questions, or need support, please reach out to us using the contact form. We'd love to hear from you.

    Get involved

    There are lots of ways you can help our campaigning efforts or get support.

    Get in touch

    If you want to get involved, have questions, or need support, please reach out to us using the contact form. We'd love to hear from you.